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Organisations supporting PPI in research, nationally

  • James Lind Alliance: Brings patients, carers and clinicians together in Priority Setting Partnerships to identify top 10 unanswered questions about effects of treatment  
  • Health Research Authority NHS: The HRA protects and promotes the interests of patients and the public in health and social care research
  • Healthtalk: Provides online information about health issues, by sharing people’s real-life stories collected by academic researchers. Includes experiences on PPI
  • Medical Research Council Clinical Trials Unit -UCL: Focus on infectious diseases and cancer, and the translation of scientific research into patient benefits. Designs and conduct innovative and challenging clinical trials with public involvement
  • McPin Foundation: Focuses on mental health research by putting the lived experience of people affected by mental health problems at the heart of research methods and the research agenda
  • NIHR: Section on engagement and participation in research for professionals emphasising the need for involvement
  • Shaping Our Lives: National organisation and network of 430 + user-led groups, service users and disabled people committed to inclusive involvement and specialise in the research and practice of involving diverse communities in policy, planning and delivery of services
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