Developed in collaboration with families, clinicians, researchers, and international patient advocacy organisations, the campaign aims to improve public understanding of the genetic and neurological conditions that affect thousands of children and families worldwide. Through clear, engaging, animated videos, the initiative explains complex topics such as neurodevelopment, genetic diagnoses, and emerging therapeutic approaches, including gene therapy.
The campaign responds to a growing need for trustworthy, accessible information about neurodevelopmental disorders — not only for affected families, but also for educators, healthcare professionals, policymakers, and the wider public.
At the heart of the initiative is a co-created video series of 16 short animations, each inspired by real questions and experiences shared by parents and carers. By combining scientific expertise with lived experience, the campaign seeks to make cutting-edge research understandable, relatable, and relevant to everyday life.
“Families consistently tell us that accessible information and public understanding are among their greatest unmet needs,” said Dr Narjes Rohani, lead researcher behind the animations in the Department. “This campaign is about opening up conversations around neurodevelopmental disorders, reducing stigma, and ensuring that advances in therapeutic genomics are communicated in a way that is meaningful and empowering for families and society as a whole.”
Read the full story on the Department of Paediatrics website.