IDDO is the first data repository dedicated to infectious diseases that has achieved this standard.
CoreTrustSeal is a non-profit, community-based organisation that assesses repositories against a set of 16 stringent requirements across organisational infrastructure, data management, and technical security. This independent certification confirms that IDDO meets international standards for the long-term preservation and responsible sharing of research data.
For IDDO, the award recognises over a decade of work building the technical, organisational and governance measures to ensure compliant reuse of scarce data about infectious diseases affecting vulnerable populations worldwide. By bringing together and standardising individual participant data from diverse studies into high-quality curated datasets, IDDO enables researchers to generate new evidence that would not be possible from individual datasets alone.
Professor Philippe Guerin, IDDO Director, said: "Reliable, well-governed data is essential to making sure that we use scarce and sparse data to its fullest, producing strong evidence that results in improved treatments for patients. This certification recognises the strength of the systems that underpin IDDO’s work, and our commitment, in partnership with our collaborators, to responsible open science for global health impact."
Read the full story on the Infectious Diseases Data Observatory (IDDO) website.